PKD Will Not Beat Me is an inspirational place to go for those seeking a positive environment to meet others with polycystic kidney disease (PKD) - to share stories, to ask questions and to make life-long friendships, encouraging each other to live positively along the way!

Thank You For Loving Me

The meaning of love evolves over our lifetime. This four-letter word seemed quite simple as a child and always within reach. I loved many things as a little girl; playing with my West Highland Terrier, “teaching” my stuffed animals, catching fireflies, and eating tasty cakes. As we become young adults we start to see and feel love in a different light. Love turns into something that, once experienced and if taken away, causes great heartache. As we continue to mature in life, love blossoms into something very desirable. It becomes an unexplainable appreciation of people and things. Something we all yearn to have, to feel, to sustain, to share.

Love is something hard to define but is a beautiful thing to feel. My dear husband, Noah, reminds me of this every day. As each health hiccup comes and goes, I am in awe by his devotion and it becomes more evident how vital caregivers are in our journey. I try to put myself in their shoes and some days think it is easier to be the patient.

During my last hospital stay, I was lying on the gurney while the nurse was trying to administer an IV. I looked into Noah’s eyes for strength as the nurse failed at numerous attempts. My thoughts were many and varied: In his past, did this remarkable 31-year-old man ever imagine marrying someone like me? Is this the life he wanted? Doesn’t he deserve better? How I wish I could give him more. Wouldn’t he much rather be doing a million other things than dealing with me and another health issue?

I have a tendency to over-think and worry about others more than myself. Our eyes remained locked and we both expressed a sigh of relief as the nurse was finally successful in administering the IV. The nurse cleaned up her supplies and left the room. Noah immediately got out of his chair and walked toward the side of my bed. The first words out of his mouth were, “Thank you for loving me.” I wondered what made him say that at that very moment. He took the words right out of my mouth!

Noah’s remarkable words of love spoken with impeccable timing like that are the best medicine. His commitment and interest in learning all he can about my health makes him an invaluable advocate. His willingness to share his life with me and take care of me when I am unable to care for myself is humbling. His strong eyes and comforting hands that rub my forehead are soothing to my body and soul. His tough love when I am being stubborn helps to ground me. His persistence to keep me happy and healthy is awe-inspiring. His willingness to wake up several times throughout the night to help sit me up and take pain meds is honorable. His hard work to provide me with the best life possible is admirable. His dedication, love, and support give me more strength than I think he will ever know. I never fathomed I would experience a love like his. I want him to know how proud I am of him. What an amazing man he is. I want him to know how priceless his love is and that he is making my challenging days so worth living. He makes me want to fight, to be a better woman, to make him proud.

Whether our caregivers are our husbands, wives, parents, siblings, children, relatives, or friends, they play an integral role in our care and our well-being. On Valentine’s Day, 189 million stems of roses are sold and 145 million Valentine cards are given in the U.S. On this loving holiday when our hearts are overflowing with joy, I would like to recognize and personally extend my sincere appreciation to the millions of caregivers out there that are caring for a loved one in need. Your love and your time mean the world to us and I commend all of you for your tireless dedication.

I would love to hear from you and encourage you to share what your caregiver means to you and how they help you on your journey with PKD.

I wish all of you a very Happy Valentine’s Day!

Noah and Valen

Happy Valentine’s Day Noah! Thank you for loving me.

Positivity | 16 Comments
Posted by Mark on February 14, 2013 at 1:21 pm

16 comments on this post.
  1. Amy, February 14, 2013 at 1:43 pm

    My caregiver is my loving husband and best friend Corey. He is my strength and inspiration. He is what gets me through each and every day. This year we did not get to spend Valentines day the way we would have liked. However it was still beautiful and wonderful. Two weeks ago I had my kidney transplant so to say the least we are stuck inside. He made me a very special dinner. It was great!!! We celebrated last night instead of today. He has been great at taking care of me and supporting me through this difficult time. Since day one when we found out about my PKD six years ago he has been nothing but supportive and done research and really find out and learn about this disease. He even was going to give me a kidney but for reasons he was unable to. I did receive my kidney through the blessing of my sister.

    Whenever i get down or depressed I can always count on my husband Corey to make me smile. I love you honey with all my heart and look forward to many more years celebrating many more valentines days with you!!! This year is just the start to a whole new beginning!!!

    Happy Valentines to all!!!


  2. Valen Keefer, February 17, 2013 at 9:13 pm

    Hi Amy,
    Thank you so much for sharing how wonderful and loving your husband is. I am so thankful to hear that you have his support. A huge congratulations on your transplant! I hope you are feeling great. Made me smile reading how supportive Corey is and I’m so glad you have him to share your life with. Hope each day is getting better and better with your new kidney. Take care!


  3. Natasna, February 18, 2013 at 9:07 pm

    Great blog post Valen! I can relate to this post so much. When I first got sick I didn’t cry over my illness I cried that my husband married someone so broken. We should have been traveling the world not traveling the state to different hospitals.

    People ask me all the time how I survived what I went through and my answer is always the same:
    My organ donor
    My Doctors and Nurses
    My Husband

    My husband is my best friend and without his care and support I do not think I would be where I am today.

    Many thanks to God for blessing us both with wonderful husbands!! Take care and hope to see you at a DL Ambassador meeting soon.


  4. Valen Keefer, February 20, 2013 at 2:00 pm

    Hi Natasha,
    It is so great to hear from you! Thank you for reading my blog! I am so happy to hear that you have a wonderful husband to help you along this journey. Their love and support makes such a huge difference! Being with Noah gives me something to look forward to and is a wonderful distraction of future fears. So happy to hear from you. I hope that all is going well with your health and I look forward to seeing you and catching up at a DL meeting soon. Big hugs!


  5. 'Laine, February 20, 2013 at 4:39 pm

    This message is wonderful. Just what I needed to read!
    It is as if I wrote it about my wife! You mirrored my most inner thoughts.
    I cannot wait for her to come home tonight so I can share this.
    We are truly blessed-to have such amazing partners to walk beside in
    Life’s adventures-
    Thanks for sharing!
    ‘Laine ( and Pat)


  6. Cathy, February 21, 2013 at 6:44 am

    Beautifully written blog Valen. Hurray for Noah and all husbands and wives who love and stick by those of us stricken with Pkd and other health issues. My husband became my nurse, chauffeur, advocate, cook, and care-giver of our son. He was & is my strength. We are now enjoying life as husband and wife. He has the time to pursue his hobbies. Ah, sweet normalcy!


  7. Deidre, February 21, 2013 at 6:14 pm

    As a girlfriend, of a current dialysis patient I absolutely love reading your blog. (Although he doesn’t suffer from PKD he has been fighting nearly his whole life with FSGS.) It is so hard to find a young person’s perspective (we are both in our late-twenties) to relate to the struggles of kidney disease, dialysis and transplantation. I enjoy all of your posts, but this one in particular literally made me cry tears of joy. Thank you so much for sharing your experiences I cannot express my gratitude to find stories that I can relate so closely to.


  8. Valen Keefer, February 22, 2013 at 12:15 pm

    Hi Laine,
    Aww, I am smiling big and am in awe that I ‘mirrored your most inner thoughts.’ I am thankful to know that you have Pat and hope that she enjoyed this post when you shared it with her. :-)


  9. Valen Keefer, February 22, 2013 at 12:18 pm

    Hi Cathy,
    Thank you so much! It is amazing how a supportive husband or wife can take on so many roles as you listed. We are so lucky! I am glad to hear that the two of you are enjoying life and that he has the time to pursue his hobbies. Indeed, normalcy is a very sweet thing. :-)


  10. Valen Keefer, February 22, 2013 at 1:23 pm

    Hi Deidre,
    You have just made my day. Thank you so much for sharing this beautiful message that really touched my heart. Thank you for being a wonderful caregiver to your boyfriend. He is very lucky to have you and please know what an important role you play. I am a national spokesperson for University Kidney Research Organization (UKRO). The Founder of the organization is Ken Kleinberg and he also has FSGS. You may find it of interest to check out their website. Here is a link to their website: http://www.ukrocharity.org and here is a link to my story on their page: http://ukrocharity.org/our-stories/valens-story/ I can completely understand as I could never find anyone my age to relate to what I was going through and that is one of the reasons I started this blog. Thank you for brightening my day!


  11. Landie, March 1, 2013 at 9:46 pm

    Thank you for being you! I’m 33 and have PKD. Your blogs make me have hope. Thank You


  12. Valen Keefer, March 2, 2013 at 2:42 pm

    Landie,
    Thank you for bringing a smile to my face and joy to my heart today. Your touching comment means so much to me. Thank you for the encouragement and confidence to keep writing. Never lose hope my friend! xo


  13. Jami Kidd, March 20, 2013 at 6:39 pm

    I have in the past avoided these blogs and websites because I have been fortunate with my disease up until the past few months plus I really didn’t want to know what my future looked like. Now faced with a nephrectomy due to renal cell carcinoma that is growing in the cyst walls, I’m ready for involvement and support. There are days I just want my family to know I’m ok by not complaining about the accumulating problems surrounding me. My heart and kidneys bite and I’m 48. Thank God for my partner and children because they unconditionally support me, I just selfishly wish they didn’t have too! Thanks for listening.


  14. Valen Keefer, March 22, 2013 at 10:54 am

    Hi Jami,
    I have met others that share your same feelings of staying away from blogs and websites and not wanting to know what your future may look like. I can appreciate that and am happy that you have found my blog and that you are willing to share your thoughts. I had a nephrectomy when I was 18. I hope that you are able to find the support you need through my blog. I am thankful to hear that you are surrounded with unconditional support. That is priceless and a huge help on our journey with PKD. I can relate to a lot of your sentiments and appreciate you opening up. I hope you will find enjoyment and support in this blog. Let me know if I can help in any way. Take good care and hope all goes well with your nephrectomy.


  15. Jackie, April 10, 2013 at 5:40 pm

    Valen you are so beautiful inside and out! The love you and Noah share is so honest and inspiring and true! I miss you sister! You’re so strong!


  16. Valen Keefer, April 10, 2013 at 8:05 pm

    Aww you are the sweetest Jackie! Thank you so so much! I miss you so very much sis! I would love more than anything to be able to have one of our fun Starbucks dates. I look forward to the day I get to see you again. I hope life is treating you wonderfully and that you and your family are doing great. I hope that Mike is showering you with all of the love that you deserve! :-) xoxo


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